August 20, 2010

Speech Therapy!

Today we had planned to have a family bbq at Timmy's facility, but when we were about to leave we got a call from the speech therapist at Timmy's facility and she said that she just got the order in to do a swollow test.  We told her that we would like it if she waited until we all got there, and she said yes.  We have been waiting for this order to go through for a while now, so we are very excited about this.  Secretly we know Timmy can swollow; he guilts us into giving him a taste of water every now and then, but it's a secret :)
When we got to the facility Josh and Crystal were already there.  My mom, Isaac, and me walked into Timmy's room and he had the biggest smile on his face.  He was the happiest I have seen him in a long time and he could not wipe the smile off his face, he was laughing so much that you could hear his voice in it.  We all stood around him with the same smile on our faces.
The speech therapist came, and first she used an oversized cotton swab with a hint of lemon taste to it, just to see if he could swollow, which he did.  So then she went and got thickened water which looked a lot like thin pudding.  Timmy liked that.  He kept opening his mouth for more, and when she said "do you want more?" he would stare at the cup and spoon.  She also gave him a little apple sauce, and when she asked him to swollow it he was joking around and wouldn't swollow, but would start laughing, then swollow.  It was so great to see him so happy.  During the assesment the Therapist mentioned that she came in before any of us got there, and Timmy smiled at her and she said "Timmy open your mouth and say 'ahhh'"  And she said that he followed her command right away.  Later when we were with her though he wouldn't for us, but I think he was just being shy since we were all staring at him.  He might have just been showing off for his therapist though.
On another note, we have everything ready to send to Dr. De Fina tomorrow.  We have all of Timmy's medical records, CT and MRI scans.  I am so excited to hear what he has to say, and the 2nd can not come soon enough. 
Please keep spreading the word about the week of fundraising it starts on Monday, and we need to raise $100,000 so that we can give Timmy this opportunity at what could be his last chance for treatment.  We also have a benefit concert in the works for the end of October, and I will keep you posted on it.

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